Appointment with Neurologist   4 comments

We are back home. We know that so many of you have been praying for this appointment. THANK YOU!

First of all, GP woke up pain free this morning. His ride down the hill was smooth, with no pain. What a wonderful gift!

The pain began again in the doctor’s office. He is currently at a 7, with rises up to 10.

The ride back up the hill was excruciating for him. He uses every fiber of his being to try and hold on to control so that he can do what we ask, trusting us to help him manage the pain. I hold him while he is screaming and remind him to breathe. It is truly awful.

The neurologist ordered blood tests to make sure the Tegretol and the Indomethacin have not hurt his liver, because he needs to increase the dosage to lessen the pain. and get him to a place where his quality of life can include activity outside of our house more than once a month.

The MRI/MRA tests both came back with clear readings. There are multiple types of MRI tests and we don’t know if these were the most effective types. We were not able to find out the exact depth measurement of the machines that were used which could mean the difference between seeing blood vessels in relation to nerves and not seeing them. We were anticipating the ability to see a blood vessel (vein or atery) compressed or wrapped around a part of the trigeminal nerve, in order to see what can be fixed. We then asked about a referral to a neurosurgeon outside of Kaiser, and he said that it would not be approved at his level. We would need to see an in-house neurosurgeon. We thought that might be the answer, so we were prepared with the name of a Kaiser neurosurgeon in San Diego, and he had no problem referring us to him. This is good news! We are hoping that the neurosurgeon will be able to; a) see different things in the MRI/MRA, and b) let us know if GP is a good candidate for surgery to move the blood vessel that could be irritating that nerve and causing the excruciating pain.

We continue to seek a “no pain, no meds” solution for GeorgePaul. We believe that this is the current task set before us. We look to Him always to set the tasks and direction.

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Posted May 3, 2011 by broshaker in The Story Overview

4 responses to “Appointment with Neurologist

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  1. I want you to know you are in my prayers. You are always supporting others, thank you for that. We all are here to support you in any way we can. Dave I miss you. I think of you and your family often.
    I will continue to be faithful in my prayers for you. God bless you and keep you strong.

  2. GP – I am praying for you and so is Uncle Dennis. We want to come over with the Rhino and take you out in it when you are feeling better…but will just come sit with you and visit in a week or so. We love you very much! ~Aunt Susan

  3. We are all continuing to pray. I’m so impressed with GP and how his beautiful personality peeks out from a sea of pain.

  4. Still praying for all of you! GP–I wish I could take this pain away from you. My prayer is that the new neurologist will be able to see you VERY SOON so you can get some clear direction on what to do next. Love and hugs to you and your family! And prayers EVERY day–throughout the day!

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